Skip to content

Category: inclusion

Published 2023/11/07

Sounds Like Misophonia

National Disability Employment Awareness Month just ended, but it’s on my mind all year long. I’m making this post in the hope that it will help someone else. Or help some folks better understand me and my non-apparent disabilities.

Misophonia

The most recent episode of The Allusionist podcast hits home for me. It tackles two topics I identify with: misophonia and alexithymia. I’ve always been more sensitive to sensory input (sounds, scents, visuals – especially flashing lights and shaky cam). Over a decade ago I made the connection with misophonia for my auditory issues. All the pieces are falling into place now that I’ve finally been diagnosed with both autism and ADHD. If I ever snapped at you or seemed preoccupied during a meal, or when you were maybe drumming on the back of the car seat I was sitting in (hello my musician friends), this is why.

being over-responsive to sensory information, more tuned into sensory information, and more likely to apply meaning or context to sensory information, and that is really a very common feature in both autism and ADHD and therefore it predisposes that person to develop misophonia

Dr. Jane Gregory

I’ve particularly struggled with the sounds of other people eating. I lived with one partner who clanged cutlery against his teeth and it absolutely enraged me, which made me feel awful. Then I worked for a company that had a cafeteria and expected employees to sit together to eat lunch. The acoustics and lighting in the space were so overwhelming it nearly brought me to tears. I opted to take a daily lunch walk instead and quickly eat at my desk afterward. I’ve developed these coping methods over the years. Avoidance or noise canceling headphones are my main tools.

Alexithymia

Alexithymia is the thing I don’t have a handle on yet. I remember being frustrated when a therapist would ask me to describe my feelings or where in my body I felt them. I have no idea. But now I know *why* I have no idea.

“Alexithymia is a neuropsychological phenomenon characterized by significant challenges in recognizing, expressing, and describing one’s own emotions. It is associated with difficulties in attachment and interpersonal relations. While there is no scientific consensus on its classification as a personality trait, medical symptom, or mental disorder, alexithymia is highly prevalent among individuals with autism spectrum disorder (ASD), ranging from 50% to 85% of prevalence.”

The Book

This book contains everything I wish I’d known when I was a teenager, hiding a giant whirring walkman in the pocket of my school uniform so that I could block out the sounds of my classmates clicking through all the colours in their four-pens. It’s not just coping strategies (although there are plenty of those), it’s also full of ideas to help your brain make new associations with sounds, which brings down the intensity of your reactions. I cover some of the exciting research that’s happening in the world of misophonia, connect you with your inner miso child, help you deal with big emotions and embrace the meerkat within. Adeel Ahmad shares stories from our volunteers who worked through the book while it was being written. There are several out-of-date pop culture references, and you’ll be happy to hear that my editors and early readers very firmly encouraged me to remove the rest of them.

Dr. Jane Gregory: Sounds Like Misophonia
Sounds like misophonia banner with cover of the book. How to stop small noises from causing extreme reactions by Dr. Jane Gregory with Abdeel Ahmed published by Green Tree
1 Comment
Published 2023/11/06

Disability Employment Awareness

Somehow it’s already November. But every October, it is National Disability Employment Awareness Month (NDEAM). This celebrates the contributions of America’s workers with disabilities. And showcases supportive, inclusive employment policies and practices that benefit employers and employees. The Office of Disability Employment Policy (ODEP) chose “Advancing Access and Equity” as the theme for NDEAM 2023.

I shared these resources within my company at our monthly Accessibility Community of Practice meeting:

I also shared the good news that civil rights litigator Karla Gilbride was sworn at the U.S. Equal Employment Opportunity Commission. The role was vacant as she waited a year and a half to be confirmed. She will lead the EEOC’s critical litigation efforts on behalf of workers accusing their employers of discrimination based on race, sex, age, disability, and other characters. Gilbride is blind and the first person with a known disability in the role of general counsel at the EEOC. This is in line with our “Nothing About Us Without Us” motto and I’m glad of it.

Visit Global Disability Inclusion for more information! On the history of disability employment awareness in the United States, and some of the stigma still surrounding it.

Collage of arrows in various colors pointing forward, with images of disabled people at work. The text reads “Advancing Access & Equity, National Disability Employment Awareness Month, Celebrating 50 years of the Rehabilitation Act of 1973.” Also #NDEAM, #RehabAct50 and dol.gov/ODEP.
1 Comment
Published 2023/09/06

International Color Blind Awareness Day

September 6th is International Color Blind Awareness Day. It was John Dalton’s birthday. He was one of the first scientists to study the condition and to make strides in color blindness research.

Color blindness impacts 1 in every 12 men and 1 in every 200 women. Most color blindness is inherited genetically. People often become aware of their condition in childhood. However, some people may not realize they are color blind simply because they are not aware that others see color differently. That’s where testing comes in. There are a number of color blind tests online. Eye doctors can also administer testing. The most common type of color deficiency test is the color plate test.

Ishihara test plate to test for color vision deficiency

Color contrast between text and background is important. It affects many people’s ability to perceive the information. Colors with poor contrast will increase the difficulty of navigating, reading, and interacting with websites and apps. Good design includes sufficient contrast between foreground background and colors. Not just for text but also for images links, icons, and buttons. This is an evergreen (pun intended) post about the importance of color contrast in digital accessibility.

Leave a Comment
Published 2023/08/25

August Accessibility News Round-Up

Some fun news for a Friday! Writer and wheelchair user Sophie Morgan enjoyed the first wheelchair-accessible safari in South Africa’s Klaserie National Park. “The African bush and all of its delights are just waiting to linger in the memories of those who are able to experience her. Now, the world’s first luxury wheelchair-accessible safari is ensuring that privilege can belong to everyone.”

In the US, here are 10 Wheelchair-friendly Trails Through the Country’s Best National Parks. These accessible national park trails are suitable for people using wheelchairs, scooters, crutches, and walkers.

In my home state, our Great Minnesota Get-Together (State Fair) started just yesterday, Thursday August 24th, 2023. And runs through Labor Day, September 4th, 2023. This year they’ve made some improvements to make it even more inclusive. Their accessibility guide provides information about:

  • Mobility options, including electrical outlets for recharging electric mobility scooters
  • ASL interpreting services
  • Captioning services
  • Audio description services
  • Sensory friendly visits
  • Service animals

Last month was Disability Pride Month. It’s a time for us to celebrate within the disability community, sure. But also to put the spotlight on some challenges we face. In the case of athlete Alex Parra, it is the high cost of athletic prosthetics:

When I was told that a running blade was going to cost $35,000 I thought I was never going to be able to run again. My life changed when I received my running blade from the Challenged Athletes Foundation. Not from my medical provider or from the help of insurance but from a non profit that was willing to help

As time went on I realized there needs to be change so I wanted to bring awareness to the disability community and how much that we have to spend on any disabled equipment or medical devices that we NEED.

So I wanted to run a Marathon on crutches. Although I didn’t finish the 26 miles (16 miles total) I was still able to accomplish something that I never thought I would’ve been capable of doing

This would not have been possible without everyone’s love and support along the way so truly from the bottom of my heart thank you. With your help we have been able to raise a total of $2500 and bring change along the way!

Alex Parra


Last but not least, I love this silent disco story. Vibrating haptic suits give deaf people a new way to feel live music. Made possible by Music: Not Impossible. An off-shoot of Not Impossible Labs, which uses new technology to address social issues like poverty and disability access. A recent event at Lincoln Center for the Performing Arts called “Silent Disco: An Evening of Access Magic” showcased the suit’s potential.

Concert goers dancing at the Silent Disco dance party at Lincoln Center, New York City on Saturday, July 1, 2023. Haptic suits designed for the deaf community were provided by Music: Not Impossible.
Lanna Apisukh for NPR
Leave a Comment