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Category: disability

Accessible Places

Broken Lifts

International Wheelchair Day is observed every March 1st. I am interested in physical accessibility as much as digital accessibility, but especially the point where the two meet. Where technology can improve physical accessibility by removing barriers or at least warn folks about them. Recently, I came across an older project that came out of “Random Hacks of Kindness” in Berlin called Broken Lifts.

Broken elevators at train stations are a big problem for people who rely on wheelchairs and walking aids, but also for families with strollers. That’s why it’s important to find out about breakdowns in good time. Of course, complex machines like elevators can occasionally break down. Vandalism does the rest. For this reason, BrokenLifts was created – a project by the SOZIALHELDEN association and the Berlin-Brandenburg transport association in collaboration with the HENKELHIEDL project office for the automated visualization of elevator breakdowns in local public transport in Berlin. The elevator malfunction information from the Berlin S-Bahn and the BVG is retrieved, analyzed and bundled every 15 minutes as a database.

Random Hacks of Kindness

Wheelmap.org

The same folks who came up with Broken Lifts are behind wheelmap.org, a map for finding wheelchair accessible places. Anyone can contribute and mark public places around the world according to their wheelchair accessibility.

Google

Of course, there’s a bigger player on the scene. In 2020, Google Maps launched a mode called Accessible Places. When toggled on, it more prominently shows wheelchair accessibility info.

“When Accessible Places is switched on, a wheelchair icon will indicate an accessible entrance and you’ll be able to see if a place has accessible seating, restrooms or parking,” Google explains in a blog post. “If it’s confirmed that a place does not have an accessible entrance, we’ll show that information on Maps as well.”

Find wheelchair-accessible places

In October 2023, Google announced another expansion of its accessible navigation features. It included:

  • Stair-free wheelchair-accessible routes
  • Updated Live View experiences for users who are blind
  • A new identity attribute label for disabled-owned businesses
Sasha Blair-Goldensohn, the wheelchair user making Google Maps more accessible, positioned near a NYC subway elevator with a sign indicating it is out of service

“It’s a basic human right to enter a place like anybody else,” says Sasha Blair-Goldensohn. This simple ideal can seem maddeningly out of reach for wheelchair users in America’s largest and most expensive metropolis. But for Blair-Goldensohn, a 48-year-old software engineer and United Spinal member from New York City, it’s the driving force of his life.

Meet the Wheelchair User Making Google Maps More Accessible

Though his work at Google touched on its Maps technology, Sasha Blair-Goldensohn wasn’t thinking much about the actual route-finding features — how people get from A to B. That changed one morning while he was walking through Central Park to catch the subway and a 100-pound tree limb fell on him. The limb fractured his skull and he sustained a T5 spinal cord injury.

New York City has one of the best subway systems in the U.S., but only if you can navigate stairs. Blair-Goldensohn’s Manhattan commute was hampered by the Metropolitan Transportation Authority system. More than 30 years after passage of the Americans with Disabilities Act, it still lacked wheelchair access in nearly 75% of commuter train stations.

Advocacy

Sasha Blair-Goldensohn stepped up his advocacy by working with legal nonprofit Disability Rights Advocates to bring a class action lawsuit. Blair-Goldensohn served as one of the plaintiffs alleging violations of the New York City Human Rights Law due to the subway system’s inaccessibility. It took six years, but in April 2023, a judge approved a final settlement compelling the Metropolitan Transportation Authority to budget for and “add elevators or ramps to create a stair-free path of travel [in] at least 95% of the system’s currently inaccessible subway stations by 2055.”

A group of wheelchair users and allies holding protest signs in NYC that say Stranded by Cuomo and Elevators are for Everyone

Subway elevators were frequently broken down, further limiting mobility and inclusion. “You are either stuck on the inside or the outside,” he says. “In one situation, at least you are on the surface, but you realize there’s no way home because the elevator is shut down for who knows how long. In the other situation, you are several flights of stairs down and you have to rely on strangers to carry you out.”

Sasha Blair-Goldensohn


Accessibility + Technology

For accessibility information to be helpful, it needs to be comprehensive and widely available. Collecting all the information needed to create a useful accessibility map is a big task. Fortunately, a software engineer at Google, which has the most popular free mapping app in the world with over a billion users each month, has become a strong advocate for accessibility. When Blair-Goldensohn returned to his job after his injury, it quickly became clear that his skills and understanding of what people with disabilities need made him a perfect fit for this work.

Since then, he has been working to improve the accessibility information available on Google Maps. In 2017, Google introduced a feature that lets users add details about the accessibility of places they visit. Now, Maps can show if a location has a wheelchair-accessible entrance, marked by the ♿ icon, as well as accessible seating, restrooms, and parking. In 2018, Blair-Goldensohn led a project to display wheelchair-accessible routes for public transportation.

Google Maps depends on its users to share information about various features, from what businesses offer to travel times and directions. Before last summer’s Paralympics, Blair-Goldensohn’s team met with Paralympic athletes to inform them about the accessibility features on Google Maps and to gather their experiences using the service while traveling abroad.

For Blair-Goldensohn, whose work revolves around universal design, it’s hard to understand why you would do things any other way. To him, working toward a world that can be accessed by everyone, benefits everyone. “Solidarity is powerful,” he says. Agreed!

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The Personal is the Political

This isn’t my usual year-end post. The mood has been bleak in the US, post-election. The incoming administration is openly hostile to people with disabilities, among many other marginalized groups.

Project 2025 takes a wrecking ball to federal measures that address real issues disabled people face in accessing critical supports and services. If even only some of the policies outlined here are fully enacted or required by executive order, disabled people would face insurmountable hurdles to living and participating in their communities.

Center for American Progress

Ahead of the election, a group of talented individuals pulled together illustrated panels explaining the dangers of Project 2025. And the National Urban League also posted about its potential impacts.

Stop Project 2025

Despite Trump’s win, we can’t throw up our hands and give up after inauguration day. It’ll be up to us to push back.

Together we will need to do what we can to protect us. Protect our immigrant friends, family, and neighbors. Protect reproductive freedom and LGBTQ rights. Protect privacy and guard against surveillance. And protect peaceful protest. The 2017 Trump resistance playbook is out. Community organizing is in. We need better plans moving forward. To focus our energy locally. And support mutual aid networks near us.

Update: I came across this helpful resource for Some Actions That Are Not Protesting or Voting

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Disability, Culture, and Creativity

I’m a long-time fan of Gaelynn Lea. She is a musician, public speaker, and disability advocate from my home state of Minnesota. Recently, she appeared in a video featured in the closing ceremonies of the 2024 Paralympics. Less recently (but also wonderfully) she delivered an NPR Music Tiny Desk Concert.

A crowd of disabled musicians and athletes gather at a skate park in front of an ocean beach

The TPT series Art + Medicine explores healthcare through story, song and the arts. Hosted by Drs. Jon Hallberg and Tseganesh Selameab. This series is a co-production of TPT-Twin Cities PBS and the Center for the Art of Medicine at the University of Minnesota Medical School.

Gaelynn Lea’s episode about disability, culture, and creativity was nominated for an Upper Midwest Emmy. Artists and healthcare clinicians create alternative perspectives on disability, through stories and performances, and redefine what we perceive as normal. Watch the episode in full on the TPT website.

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Disability Pride Month 2024

Disability Pride Month takes place each year in July. I follow a lot of other accessibility professionals and disability activists and either learn a lot or experience validation (or both) from their posts, especially during the month of July. One post I came across recently really had me nodding my head. Celia Chartres-Aris and Jamie Shields reached out to disabled people around the world for ‘The Big Ableism Survey.’ They asked participants how they really felt about ableism, how ableism affected them, how they dealt with internalized ableism and more.

  • 95% of disabled people have experienced ableism
  • 99% of disabled people believe that non-disabled people need more training and education on Ableism.
  • Only 1.5% of disabled people have never experienced internalized ableism.
  • Only 6.6% of disabled people have never experienced mental health challenges as a direct result of their disability.

Their site has the full report in multiple formats. It is worth your time.

July Disability Pride Month
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Celebrating Mobility and Inclusion

International Wheelchair Day was first launched in 2008 and is observed every March 1st. Wheelchair user Nabila Laskar says the day’s goals are:

  • To enable wheelchair users to celebrate the positive impact a wheelchair has in their lives so that they can access employment, participate in the community, get involved in social activities and more.
  • To celebrate the great work of millions of people who provide wheelchairs, who provide support and care for wheelchair users and who make the world a better and more accessible place for people with mobility issues.
  • To acknowledge and react constructively to the fact there are many tens of millions of people in the world who need a wheelchair, but are unable to acquire one.
Colorful illustration of a person in a wheelchair with word bubbles exclaiming March 1st International Wheelchair Day

Progress

In 2023, many wheelchair users took to social media. They expressed the impact their mobility devices have on their freedom and quality of life. Here are 10 of their reflections. Last year I was also introduced to a cool company called Izzy Wheels. Founded by two sisters who creates cool wheelchair covers so that wheelchair users can customize their look.

In the past, I’ve also posted about off-road wheelchairs being made available in public parks. From those in my own state of Minnesota, to the beaches of Oregon and beyond. Unfortunately wheelchair users still face many frustrations. Especially when traveling by air.

Problems

Last Fall, a video went viral of an American Airlines baggage handler. Showing a passenger’s wheelchair sliding down a jet bridge chute. It crashed into a metal barrier, flipped over and tumbled onto an airport tarmac.” Sadly, this is not an uncommon occurrence.

In 2022, the 10 largest U.S. airlines lost, damaged or destroyed more than 11,000 wheelchairs and scooters, according to the Department of Transportation. That represents 1.5% of all wheelchairs and scooters boarded onto planes. 

CBS News

When an airline damages, loses, or delays a passenger’s wheelchair, it is a significant problem. It endangers that person’s health and can seriously limit their mobility and independence. Just last month, U.S. Transportation Secretary Pete Buttigieg announced a new proposed rule from the U.S. Department of Transportation (DOT) that would ensure airline passengers who use wheelchairs can travel safely and with dignity. This proposed rule would be the biggest expansion of rights for passengers who use wheelchairs in the United States since 2008.

Potential Solutions

The proposed rule would take major actions in three key areas: 

  1. Penalties and remedies for wheelchair mishandling 
  2. Safe, dignified, and prompt assistance 
  3. Improved standards on planes 

It’s unclear if this was prompted by Senator Duckworth’s MOBILE Act from 2023. Whatever the case may be, I hope for an outcome that will lead to more accountability and accessibility for travelers with disabilities.

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Against Technoableism

2023 has been a great year for books in the disability space. Previously, I posted about Sounds Like Misophonia by Dr. Jane Gregory. Most recently, my copy of Against Technoableism arrived.

When bioethicist and professor Ashley Shew became a self-described “hard-of-hearing chemobrained amputee with Crohn’s disease and tinnitus,” there was no returning to “normal.” Suddenly well-meaning people called her an “inspiration” while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don’t want what the abled assume they want—nor are they generally asked. Almost everyone will experience disability at some point in their lives, yet the abled persistently frame disability as an individual’s problem rather than a social one.

The MIT Press Bookstore

Technology needs to do more for people with disabilities. Ashley Shew argues that it’s not the individuals who need “fixing,” it’s their environment. The author is participating in an upcoming free talk. The ITS Technoableism seminar series presents: Ashley Shew on Monday, January 15th, 2024. She was also a guest on The Disability Rights Florida podcast last month.

Against Technoableism: Rethinking Who Needs Improvement (A Norton Short)

Prior to that, the most recent addition to my non-fiction book stack was The View From Down Here: Life as a Young Disabled Woman by journalist Lucy Webster. In her own words, it is “a memoir exploring what it’s like to live at the intersection of ableism and sexism, how these forces have shaped me, and how society often fails to see disabled women as women at all.” Get the book and sign up for her newsletter!

The View From Down Here: Life as a Young Disabled Woman By Lucy Webster book cover Out Sept 2023

Skipping back to October, a couple of significant things occurred. After years of wondering, I was formally diagnosed with autism and ADHD. On the same day I had my final session with my fantastic clinician, a book I pre-ordered arrived. And, in the most ADHD move ever, another copy of the same book showed up the next day. Apparently, I’d pre-ordered it two days in a row without realizing it. That book was Unmasked: The Ultimate Guide to ADHD, Autism and Neurodivergence by Ellie Middleton. Thankfully, I was able to give the second copy to a friend who has been pondering her own neurodivergence.

“Learning the way my brain works has changed everything for me,” she says, and describes herself as almost being a poster girl for what can happen when you get the answers you need.

Ellie Middleton BBC Access All
Author Ellie Middleton grinning while holding a copy of her book Unmasked: the ultimate guide to ADHS, autism, and neurodivergence
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IDPD 2023

Today is International Day of Persons with Disabilities (IDPD); a United Nations day that is celebrated every year on the 3rd of December. The theme for 2023 is ‘United in action to rescue and achieve the sustainable development goals for, with and by persons with disabilities.’

Given the multiple crises we are facing today, the world is not on track to reach numerous Sustainable Development Goals (SDGs) targets by 2030. Preliminary findings from the forthcoming UN Disability and Development Report 2023 indicate that the world is even more off-track in meeting several SDGs for persons with disabilities.

Our efforts to rescue the SDGs for, with, and by persons with disabilities, need to be intensified and accelerated, given that persons with disabilities have historically been marginalized and have often been among those left furthest behind.

A fundamental shift in commitment, solidarity, financing and action is critical. Encouragingly, with the adoption of the Political Declaration of the recent SDG Summit, world leaders have recommitted themselves to achieving sustainable development and shared prosperity for all, by focusing on policies and actions that target the poorest and most vulnerable, including persons with disabilities.

United Nations
Ugandan Sign language alphabet drawn on the wall of the Kamurasi Demonstration School in Masindi, Uganda.

Make Disability Advocacy Part of Your Daily Life

From Meryl Evans:

  1. Listen to the voices of people with disabilities.
  2. Be yourself. Always.
  3. Provide two modern communication options always. Online and in person.
  4. Avoid assumptions and ask. Meryl’s example: Getting me an ASL interpreter without asking will deprive someone else who needs the interpreter. There’s a shortage of interpreters. Let’s make sure the right people have access to them.
  5. Understand one person does not represent an entire disability category.
  6. Involve people with disabilities from start to finish and beyond. Pay them for their time. Turning off the sound does not mimic the experience of a person who depends on captioning every day. Refer to No. 4 as companies and product development often make assumptions.
  7. Hire qualified people with disabilities. Data shows that people with disabilities tend to be the most loyal and best workers who bring in more revenue for companies who hire them. The hiring process needs to change.
  8. Make progress with accessibility every day. It can be small steps like adding alternative text (image descriptions) to images. Make captions part of your video creation process.
  9. Skip using overlays on your website to fix accessibility. This isn’t making progress. It’s a step backward.
  10. Avoid hiring speakers who know little about accessibility and disabilities. Some people with disabilities aren’t qualified to speak on these topics.
  11. Ensure XR, virtual reality, and augmented reality are accessible.

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Sounds Like Misophonia

National Disability Employment Awareness Month just ended, but it’s on my mind all year long. I’m making this post in the hope that it will help someone else. Or help some folks better understand me and my non-apparent disabilities.

Misophonia

The most recent episode of The Allusionist podcast hits home for me. It tackles two topics I identify with: misophonia and alexithymia. I’ve always been more sensitive to sensory input (sounds, scents, visuals – especially flashing lights and shaky cam). Over a decade ago I made the connection with misophonia for my auditory issues. All the pieces are falling into place now that I’ve finally been diagnosed with both autism and ADHD. If I ever snapped at you or seemed preoccupied during a meal, or when you were maybe drumming on the back of the car seat I was sitting in (hello my musician friends), this is why.

being over-responsive to sensory information, more tuned into sensory information, and more likely to apply meaning or context to sensory information, and that is really a very common feature in both autism and ADHD and therefore it predisposes that person to develop misophonia

Dr. Jane Gregory

I’ve particularly struggled with the sounds of other people eating. I lived with one partner who clanged cutlery against his teeth and it absolutely enraged me, which made me feel awful. Then I worked for a company that had a cafeteria and expected employees to sit together to eat lunch. The acoustics and lighting in the space were so overwhelming it nearly brought me to tears. I opted to take a daily lunch walk instead and quickly eat at my desk afterward. I’ve developed these coping methods over the years. Avoidance or noise canceling headphones are my main tools.

Alexithymia

Alexithymia is the thing I don’t have a handle on yet. I remember being frustrated when a therapist would ask me to describe my feelings or where in my body I felt them. I have no idea. But now I know *why* I have no idea.

“Alexithymia is a neuropsychological phenomenon characterized by significant challenges in recognizing, expressing, and describing one’s own emotions. It is associated with difficulties in attachment and interpersonal relations. While there is no scientific consensus on its classification as a personality trait, medical symptom, or mental disorder, alexithymia is highly prevalent among individuals with autism spectrum disorder (ASD), ranging from 50% to 85% of prevalence.”

The Book

This book contains everything I wish I’d known when I was a teenager, hiding a giant whirring walkman in the pocket of my school uniform so that I could block out the sounds of my classmates clicking through all the colours in their four-pens. It’s not just coping strategies (although there are plenty of those), it’s also full of ideas to help your brain make new associations with sounds, which brings down the intensity of your reactions. I cover some of the exciting research that’s happening in the world of misophonia, connect you with your inner miso child, help you deal with big emotions and embrace the meerkat within. Adeel Ahmad shares stories from our volunteers who worked through the book while it was being written. There are several out-of-date pop culture references, and you’ll be happy to hear that my editors and early readers very firmly encouraged me to remove the rest of them.

Dr. Jane Gregory: Sounds Like Misophonia
Sounds like misophonia banner with cover of the book. How to stop small noises from causing extreme reactions by Dr. Jane Gregory with Abdeel Ahmed published by Green Tree
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Disability Employment Awareness

Somehow it’s already November. But every October, it is National Disability Employment Awareness Month (NDEAM). This celebrates the contributions of America’s workers with disabilities. And showcases supportive, inclusive employment policies and practices that benefit employers and employees. The Office of Disability Employment Policy (ODEP) chose “Advancing Access and Equity” as the theme for NDEAM 2023.

I shared these resources within my company at our monthly Accessibility Community of Practice meeting:

I also shared the good news that civil rights litigator Karla Gilbride was sworn at the U.S. Equal Employment Opportunity Commission. The role was vacant as she waited a year and a half to be confirmed. She will lead the EEOC’s critical litigation efforts on behalf of workers accusing their employers of discrimination based on race, sex, age, disability, and other characters. Gilbride is blind and the first person with a known disability in the role of general counsel at the EEOC. This is in line with our “Nothing About Us Without Us” motto and I’m glad of it.

Visit Global Disability Inclusion for more information! On the history of disability employment awareness in the United States, and some of the stigma still surrounding it.

Collage of arrows in various colors pointing forward, with images of disabled people at work. The text reads “Advancing Access & Equity, National Disability Employment Awareness Month, Celebrating 50 years of the Rehabilitation Act of 1973.” Also #NDEAM, #RehabAct50 and dol.gov/ODEP.
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International Color Blind Awareness Day

September 6th is International Color Blind Awareness Day. It was John Dalton’s birthday. He was one of the first scientists to study the condition and to make strides in color blindness research.

Color blindness impacts 1 in every 12 men and 1 in every 200 women. Most color blindness is inherited genetically. People often become aware of their condition in childhood. However, some people may not realize they are color blind simply because they are not aware that others see color differently. That’s where testing comes in. There are a number of color blind tests online. Eye doctors can also administer testing. The most common type of color deficiency test is the color plate test.

Ishihara test plate to test for color vision deficiency

Color contrast between text and background is important. It affects many people’s ability to perceive the information. Colors with poor contrast will increase the difficulty of navigating, reading, and interacting with websites and apps. Good design includes sufficient contrast between foreground background and colors. Not just for text but also for images links, icons, and buttons. This is an evergreen (pun intended) post about the importance of color contrast in digital accessibility.

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