We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in. Soon— but without knowing exactly when—he will likely have no vision left.
Andrew Leland talks with Phoebe Judge about slowly losing his eyesight. He was in high school when he received his diagnosis of the degenerative eye disease retinitis pigmentosa, also known as RP. “It was like, ‘I’m going out in the woods with my friends at night. And oddly enough, I’m bad at it.’” Full transcript of the podcast.
Andrew Leland’s memoir, The Country of the Blind, was a finalist for the Pulitzer Prize. I chose to listen to the audiobook version, narrated by the author himself, and found him to be incredibly charismatic and engaging.
In The Country of the Blind, Andrew Leland tells the story of his gradual transition into the blindness community with sensitivity and insight. He vividly describes his new sensory perceptions and emotions and outlines controversies about the training of the blind. His experiences will resonate powerfully with those in the autism community and beyond. A valuable book.
Temple Grandin
Not long after I found Andrew’s book, I encountered a non-fiction film about the same topic. I missed its brief release in theaters but the film will be streaming December 17th, 2024.
When three of their four children are diagnosed with retinitis pigmentosa, a rare and incurable disease that leads to severe visual impairment, the Pelletier family’s world changes forever. In the face of this life-altering news, Edith Lemay, Sébastien Pelletier and their children set out on a trip around the world to experience all its beauty while they still can. As they fill their memories with breathtaking destinations and once-in-a-lifetime encounters, the family’s love, resilience and unshakeable sense of wonder ensure that their uncertain future does not define their present.
